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A Tad new to this...

Latest post 02-07-2010 7:50 AM by Rsquared. 6 replies.
  • 12-10-2009 4:23 PM

    • bfrogger
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    • Joined on 12-10-2009
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    A Tad new to this...

    Hi, I've been recently diagnosed with Celiac Disease (two weeks ago), and I was wondering if anyone had tips on how to stay gluten free?  I only have mild celiac disease and it's very tempting to eat a cookie or have cake with my friends.  Does it get easier?  And do I have to stay away from foods that were processed in a wheat factory, or is it ok to eat them?

     

    Thanks!

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    • Post Points: 95
  • 12-11-2009 5:30 PM In reply to

    Re: A Tad new to this...

    I've heard people say that before, 'I'm only a little allergic.'  If you have celiac disease, you can't have gluten.  It causes a mirad of other conditions that are far worse if you do.  How do we do it?  It isn't easy when all your friends are having cookies, cake, donuts, etc.  I try to think of it as a sort of poison, which it is for us.  I have been gluten free for almost two years now and the smell of bread sometimes makes me sick.  Although I do have accidents (not on purpose), and it isn't easy, just know it's better than the alternative.  Hang in there.

    • Post Points: 5
  • 12-17-2009 7:23 PM In reply to

    • gababie
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    Re: A Tad new to this...

    I know what you are going through.  I was on the gluten free diet for weeks when one of my doctors decided to take me off of it to do a biopsy on me.  I nearly died I was so sick during that time, and that test showed I didn't have Celiac Disease.  I did not know what to do at that point so I had to go to a specialist, who told me I DID have Celiac Disease. This process took months and months of time so thats why I say my start date of my Celiac Disease is December 3, 2009 thats the day the final diagnosis was made.  There are cookie and cakes and restaurants, speciality aisles of groceries stores, health food stores just keep researching, buying books about it, get informed as much as you can.  It gets better as you go, I promise!  But don't eat what they eat you will pay for it, buy you own and enjoy it.   

    • Post Points: 5
  • 12-18-2009 12:46 AM In reply to

    • Medicate
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    Coffee [C] Re: A Tad new to this...

     

    As all of the tips and hints you will hear..

    when you are out, carry some crackers with you- it'll help you from going to grab a roll at dinner when you are out...

    http://celiacdisease.about.com/od/theglutenfreediet/a/GrainTable.htm Coffee

    • Post Points: 5
  • 12-22-2009 8:36 AM In reply to

    • pjmaxx
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    • Joined on 12-22-2009
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    Re: A Tad new to this...

    In my and others' experiences, the first year on a gluten-free diet can be very challenging. AngryT o tackle the challenge, you may want to print out lists of gluten-free groceries sold at the stores where you usually shop. Major chains who carry GF items--like Henry's, Trader Joe's, and Whole Foods Market, will include these lists on their web sites. But if you shop at, say, a Kroger-affiliated grocery store, you'll have to make your own list. 

    If you're at all like me and my celiac friends, you'll have to spend more time in the kitchen and eat a fresher, more nutritious diet. Stick out tongueAdded kitchen time is not only necessary to save on your grocery bills because major names in processed, gluten-free foods are hard to come by; but also because the diet you'll give yourself will help support the nutritional deficiencies you likely have. (Celiac is classified, both as an autoimmune and a malabsorptive disease.)

    Major names at big-box grocery stores offer few gluten-free items--especially ready-to-eat processed foods. Heinz is one major name that--assuming you tolerate cow's milk--makes eight frozen, dinners you can safely eat. These are "Weight Watchers Smart Ones" dinners: Santa Fe Rice & Beans, Broccoli & Cheddar Potatoes, Lemon Herb Chicken Piccata, Fiesta Chicken, Creamy Tuscan Chicken, Grilled Chicken in Garlic Herb Sauce, and Home-Style Chicken Chicken Santa Fe. (http://www.heinz.com/health--wellness/focus-foods/dietary-preferences/gluten-free.aspx) And in the last couple of years, Rice and Corn Chex removed all the gluten from their breakfast cereals. Virtually all other big-name breakfast cereals do contain gluten, as do most seasoned snacks (chips, nuts, etc.), among many other processed foods, yet to be labeled under a two-year-old federal law! Confused

    Whether having wheat gluten or barley malt, about 95% of all processed foods are unsafe to celiac patients like me and you. With time, I've found it easier and easier to live with this fact, as I believe you will, too. Wink Although nearly unimaginable a couple of years ago, this is now part of my experience, even though I'd had severe GI pain, migraines, and cardiomyopathy threatening my life in 2007. Some reflections I'd like to share with you at this point in my life are: The gluten-free diet is a slow, but sure road to better health for virtually all celiac patients, even though we may become less and less conscious of improvement in our health as the worst symptoms subside at first. It's an eery, upsetting yet thrilling and uplifting experience to have eaten a poisonous food (wheat bread) at almost every meal, three times a day for the period of your life up to the time of your diagnosis and then completely eliminate it from your life. One last reflection is that there are many great gluten-free dishes available nowadays (unlike just a few yrs. ago and certainly unlike a few decades ago), but it simply takes more planning to shop and go out to eat. This makes eating an inconvenience but also a personally rewarding experience! Smile

    To respond your question, cross-contamination due to wheat being in the same facility is not usually a problem, and should not be so if the product is labeled gluten-free or has a statement that strict manufacturing practices are in place to prevent any contamination. On the other hand, a statement appearing on the packaging of a product that it was made on the same equipment as wheat will always lead me to the decision that it's unsafe to eat, unless it's labeled gluten-free (usually in addition to the statement about such mfg. practices). As someone who likes to help others, especially those who've walked along the same path as I have, I wish I could offer clearer advice. But the next piece of advice I would offer is to learn what brands and what items are reliable. In other words, wheat (or gluten thereof) is contained if and only if it's included on the ingredients list. I believe the ingredients lists of Heinz to be so. As for spices and seasoning, I believe Lawry's, McCormick, and Sun-Bird brands also have such a policy regarding their ingredients lists. However, you'll want to do your own research and read every label every time. My wife and I have made it standard operating procedure in our kitchen to read each label once at the grocery store and a second time before unpackaging the processed-food item. Stay vigilant! Yes

    Do keep in touch with us here on line. And if a celiac support group meets in your area, join it for all the moral support you need and deserve! Left Hug

    • Post Points: 5
  • 01-15-2010 2:30 PM In reply to

    Re: A Tad new to this...

    As far as the manufacturing side of it, there can be problems with a lot of candies that do not have wheat or gluten in them but the conveyor belt is coated.  If you stick to generic candies usually that is no longer a problem.  I have started always keeping a few sweets on me - like cookies, brownies, candies.  It is soooo tempting to cheat but like me you will regret it.

     

    Not to scare you but a year after I was diagnosed and not really sticking to the gluten-free diet I started having seizures and went blind.  You never know when you will reach your body's limit and it will finally tell you "fine! go eat all that stuff" and you could do serious damage to your system.

     

    I'm at college and just avoid dining halls and bring my own lunch when I meet friends.  It is hard at first but you will become a really good cook and a lot of times your friends will even ask for gluten-free stuff too.

     

    Just hang in there!

    • Post Points: 5
  • 02-07-2010 7:50 AM In reply to

    • Rsquared
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    • Joined on 02-07-2010
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    Re: A Tad new to this...

    It does get easier!  And when you actually begin to feel better, you are motivated to be even more vigilant!  I am 5 years out and I can promise you that your health and well-being is worth all of the compromise.

    READ LABELS.  Even if you have had a product in the past; things change.  I read every label, every time I choose to purchase it.

    I remember when I was first diagnosed, I asked my doctor if I could still have chocolate and peanut butter to which he said yes. I knew then that I would be okay.  Life without chocolate----oh my!

    Hang in there and good health to you!

     

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