Cornelia de Lange Syndrome Support Group

The Cri-du-chat Syndrome Support Group and Health Community is for parents of children with the disorder. Cornelia de Lange syndrome is a developmental disorder that affects many parts of the body. The features of this disorder vary widely among affected individuals and range from relatively mild to severe. Cornelia de Lange syndrome is characterized by slow growth before and after birth, mental retardation that is usually severe to profound, abnormalities involving the arms and hands, and distinctive facial features. Many affected individuals also have behavior problems similar to autism, a developmental condition that affects communication and social interaction. Additional signs and symptoms of Cornelia de Lange syndrome can include excessive body hair (hirsutism), an unusually small head (microcephaly), hearing loss, and problems with the digestive tract. If your child has Cornelia de Lange Syndrome please join this support group.