Hi Stacey. I don't have seizures, its my husband who does.
In March, 2006, he was at work, and went to move a tree branch off the roof of a shed he was about to move, and it broke off, hit him on the top of his head, and knocked him out. He woke right up, went back to work. When he came home, he took his hat off and there was a 4 inch long crack in the top of his skull. Since he didn't even have a headache, he declined the hosptial.
About 4-6 months later, I got a call from his boss. Apparently, my husband was walking through a yard when he fell forward into a fence and started convulsing hard. He ended up in the ER, but they blew him off, saying it was the heat & the fact that he was taking xanax.
After 3-4 more of these...he ended up in a different ER wih a DR that put 2+2 together & asked us if he ever got hit in the head. After we told him yes, he did a CAT scan, and concluded he had post-traumatic Epilepsy. He put him on Dilantin, which my husband refused to take due to his past liver problems. Went back, switched him to Keppra.
Neither of us had insurance, so it was very expensive each month. Then in September 2007, he was driving, had a large shed on the back of his trailer, and seized while driving. He promptly got fired, and he could not find another job, being scared to drive or do any heavy equipment work.
We applied for disability and got turned down twice, then hired an attorney, who put us in contact with the Epilepsy Foundation. They really helped him out, sendiing him & paying for Neurologists and medications. He was switched to Zonegran off Keppra. The first generic he got (green & white Zonisamide) while waiting for his 6 month supply through the mail worked great. We still waited and was switched to a different generic (red & white Zonisamide) which he immediately had a seizure on. Then the panic attacks started. (When he has his start, mine start..he gets ME all worried & worked up, too!) Thank God the name brand Zonegran finally came. He was on that about a month & a half when he missed his evening dose. The next afternoon, (just last week) he had his worst seizure yet.
BUT this time, he had known something was wrong...he suddenly got extremely dizzy & had the worst adrenaline rush/panic attack I've ever seen, then boom. Down. HARD..Hopefully he will have this premonition the next time, so Ican at least try to get him to a safer place. This time he hit his head on the corner of our kitchen counter. Another CAT scan & more hospital & ambulance bills.
The main problem with Zonegran: we live in Florida...it's HOT 10 months out of the year and this med really messes with one' core body temp...why the doc put hm on such a med is beond me.
Finally our attorney got him approved for disability. Why we have to wait until August 2010 is beyond me. We can't get any answers from anyone. He has so many other side effects or symptoms like insomnia, a consant headache, and panic attacks almost daily & his memory loss is increasing. All from one bump on the head.
When my husband seizes, it's diffuculy to watch, terrifying, and scary. He foams, turns blue, yells out before he drops, and is incontinent. Very violent seizing. And like Maddie...our dogs immediately "attack" him. Not attack...my pit races to his face and nips & licks, trying to snap him out of it...my chow focuses on his clenched fists. It IS hard to get the dogs off while maintaining an open airway.
Now my husband just saw me doing this and he's mad. He says he wants to know nothing about this at all. He is ashamed, embarrassed, and won't go out in public with me because he's afraid of making a spectacle of himself if he seizes. I cannot work now because I cannot leave him alone. I'm scared to leave him home alone, and since he's homebound, so am I.
Our grown sons have moved so far away I have no options except to reach out online for now. Maybe once he gets all his disability benefits, we can get to a REAL doctor for some real testing & medication to find out what's up.
I'm basically here for ME..to learn more & to find out the right things to ask the doctor once we get there..(another new one on Monday).
So...I'm just doing all the research I can for now and I'll be on here ever few days to see what's up. Thank you for giving us a forum to share.