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I don't know what could be wrong. I have temporal lobe epilepsy, but have all kinds of symptoms going on that no one seems to know why. I am tired all the time, my memory has gone to hell, and I always feel like I am in some kind of fog. Most of the time my joints hurt and I get rashes that are in ramdom spots all over. Sometimes I can't even stand up long enough to take a shower. When I try to sleep at night my legs burn like they are on fire and sometimes I can't move. I have headaches nearly everyday and my vision goes weird like I can't focus on anything. I keep losing my balance and run into things alot. The only thing the doctors have ever found is low b-12 a few years ago and I got injections for a while but the level is normal now. They also said I had slightly elevated thyroid levels but not bad enough to treat. I work full time, but that is difficult since I forget things and am falling asleep at my desk. I couldn't even remember my address yesterday. This is crazy I feel like I am 90 years old and I am only 37. Has anyone experienced something like this?

Posted Oct 17 2009, 04:14 PM by benny

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cdivinity wrote re: ?

on 12-12-2009 10:52 AM

Yes, I am experiencing almost all of the same symptoms as you are, with the exception of the rashes. Unfortunately, other than being able to identify with you and assure you that you aren't alone, there isn't much help I can offer. My Drs. haven't been able to diagnose anything either. Thus far, I don't even have a confirmed TLE diagnosis, although it's suspected. They are telling me that TLE could encompass all of these symptoms however, and from what I've read, perhaps this could be true. I seem to do better with the least amount of stress in my life as possible. Easier said than done in our society, but maybe if you cut back on non-essential obligations, it will help???

Hang in there!!! :)

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