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Surprise Don't know how to manage this site.  I have Lupus, separately depression (my Dad had the same depression).  I'm always up against financial difficulties because I can't work so much. God always takes care of me.--Christianna

 


Posted Jan 09 2010, 10:57 AM by christianna  

Comments

Frustrated wrote re: Newbie
on 01-10-2010 3:18 PM

I decided to post this for everyone with Lupus. There is no cure for Lupus, but it may be a misdiagnosis and going gluten free may be worth a try.

I felt the same way but my diagnosis was different. After being diagnosed with fibromyalgia and IBS, I finally found my real problem. Celiac disease, I'm writing you because I saw a special on tv that talked about the symptoms of Lupus and how the doctors conclude that it's Lupus only by eliminating everything else.

Celiac disease and gluten intolerance have so many symptoms that doctors have trouble diagnosing it and I haven't found a doctor yet that knows much at all about it. Two books to read " The Gluten Connection" and "Healthier without Wheat".

If you can eliminate the gluten take extra vitamins after your body starts to heal and slowly build up to exercise.

I know your pain and believe me, even though I still have pain, the gluten made it 100 fold.

Before being diagnosed I was so weak that I only functioned for about 2 hours a day. I was so weak that I couldn't open a can of pop. My feet hurt so bad I could hardly walk.  Now my strength is back an I only have pain from the irreversible damage that the gluten caused my body. My nerve endings have settled down.

It's been two years now and I still accidentally consume gluten on occasion and I pay for it for a week and tell myself never again it is not worth it.

Even if a doctor doesn't give a diagnosis, it would be worth a try to make the pain go away. There are many sites with helpful info.

www.gluten.net www.celiac.org  www.celiaccentral

gidge05 wrote re: Newbie
on 01-11-2010 1:56 PM

Well welcome to this site. I hope you find it helpful and benefitting to you. I have been here for about a month. Not sure if it is helpful yet. Hope all works out for you

Nowell - F2FHealth wrote re: Newbie
on 01-12-2010 9:11 AM

Hello - you should fill out your health profile - this will allow HealthMatch to match you to others just like you.

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