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shhh...

shhh...
there lies a secret deep inside
of the pain in which i must hide

sometimes it will seep and then i will weep
on the inside because i must hide

i have become a good actress
and want for the norm

but pitty is not pretty, especially when worn
so once again i am left torn

no words to be spoken
not a grimmace or wince

i cant expect understanding and thats ok
by no fault of yours am i this way

 


Posted Nov 15 2009, 01:48 AM by KissedByAButterfly  

Comments

Banany wrote re: shhh...
on 12-03-2009 3:20 AM

Ahh yes time to say good bye to me and become "normal" my feelings of anger and sadness piss my husband off so i must medicate them to the point that my child said this to me,"Mommy arent you happy for me?" "Yes I am honey." "Then why isnt your mouth smiling?" I thought I was. I have to become her again because my feelings make my husband angry and I am the only one taking responceability for our chlldren. So good bye me, hello non feeling worker drone. Goodbye to the last of the real me. All i need now is a pill to for get how rotten he really is to me. I share that deep deep  pain and sadness.

KissedByAButterfly wrote re: shhh...
on 12-03-2009 7:22 AM

I understand...

Frustrated wrote re: shhh...
on 01-10-2010 3:23 PM

I decided to post this for everyone with Lupus. There is no cure for Lupus, but it may be a misdiagnosis and going gluten free may be worth a try.

I felt the same way but my diagnosis was different. After being diagnosed with fibromyalgia and IBS, I finally found my real problem. Celiac disease, I'm writing you because I saw a special on tv that talked about the symptoms of Lupus and how the doctors conclude that it's Lupus only by eliminating everything else.

Celiac disease and gluten intolerance have so many symptoms that doctors have trouble diagnosing it and I haven't found a doctor yet that knows much at all about it. Two books to read " The Gluten Connection" and "Healthier without Wheat".

If you can eliminate the gluten take extra vitamins after your body starts to heal and slowly build up to exercise.

I know your pain and believe me, even though I still have pain, the gluten made it 100 fold.

Before being diagnosed I was so weak that I only functioned for about 2 hours a day. I was so weak that I couldn't open a can of pop. My feet hurt so bad I could hardly walk.  Now my strength is back an I only have pain from the irreversible damage that the gluten caused my body. My nerve endings have settled down.

It's been two years now and I still accidentally consume gluten on occasion and I pay for it for a week and tell myself never again it is not worth it.

Even if a doctor doesn't give a diagnosis, it would be worth a try to make the pain go away. There are many sites with helpful info.

www.gluten.net www.celiac.org  www.celiaccentral

Ps It may be even harder for you without a supportive spouse to go gluten free.

i_b_jo_e wrote re: shhh...
on 01-16-2010 2:14 PM

Beautifully yet sadly spoken. You are not alone.

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