What is this that I feel?

I felt the same way but my diagnosis was different. After being diagnosed with fibromyalgia and IBS, I finally found my real problem. Celiac disease, I'm writing you because I saw a special on tv that talked about the symptoms of Lupus and how the doctors conclude that it's Lupus only by eliminating everything else.

Celiac disease and gluten intolerance have so many symptoms that doctors have trouble diagnosing it and I haven't found a doctor yet that knows much at all about it. Two books to read " The Gluten Connection" and "Healthier without Wheat".

If you can eliminate the gluten take extra vitamins after your body starts to heal and slowly build up to exercise.

I know your pain and believe me, even though I still have pain, the gluten made it 100 fold.

Before being diagnosed I was so weak that I only functioned for about 2 hours a day. I was so weak that I couldn't open a can of pop. My feet hurt so bad I could hardly walk.  Now my strength is back an I only have pain from the irreversible damage that the gluten caused my body. My nerve endings have settled down.

It's been two years now and I still accidentally consume gluten on occasion and I pay for it for a week and tell myself never again it is not worth it.

Even if a doctor doesn't give a diagnosis, it would be worth a try to make the pain go away. There are many sites with helpful info.

www.gluten.net www.celiac.org  www.celiaccentral

I hear ya...sometimes it feels like too much to handle. I wonder how in the world can a body given to us to work, play & enjoy, ever betray us the way it does. I just keep on trying 1 day at a time & hoping tomorrow will be better. Is this denial or faith?

I am there with you.  The pain seems to go on and on.  It sometimes feels like my body is on fire beneath my skin... yet the surface, it is cool.  I cannot stand to be touched.  It hurts so badly.

One drug is just beginning to give me some relief, Frustrated (or I hope it is!).  Have you tried Lyrica?  It did not help much until my rheumatologist doubled my dosage last week.  The pain is still there but not as bad as before.