one day at a time

My 9 year old has Myoclonic Absence Epilepsy. At first they thought he had JME. Myoclonic Absence Epilepsy is in the same family as JME, the difference is that Myoclonic Absence epilespy is resistive to all medications. Before being diagnosed with this Dylan was on 9 different medications in one year. He suffered several side effcect.  My son was diagnosed last year when he was 8. He suffers from Absence, Myoclonic, Tonic Clonic, Status and clusters.  Even though there is no right combination of meds for him we are hopeful that they will at least be slowed down. In addition to this I have a 13 almost 14 year old that suffers from OCD. So I do hae my hands full. Everyday is a challenge with my boys. We are currently on a waiting list to get a seizure service dog for Dylan. We have been doing fundrasiers to help raise money for a fence we need for the dog. Any additional money we get all go to the Epilespy Foundation. In addition to doing fundraisers whenever we can I also wrote an educational Epilepsy  childrens book called Through His Eyes. The book has been approved by the National Epilepsy Foundation and is even available for purchase on their online store. My older son designed a wonderful website for Dylan so people can visit and send donations.  If you would like to view it go to www.dylanhector.com  feel free to sign into the guest book on the home page.