FacetoFace Health Logo  
Sign in | Join | Help   
 
 


My Lyme Story

I was diagnosed with Lyme + several co-infections in February, 2007, by a doctor in NYC, after going to 12-14 different specialists in my area, the DC Metro Region over the course of 2 years. The NYC doc helped a lot and I seemed to be well again. About 9 months later, all the symptoms (and more) came back *with a vengence*. I was blessed to hear of an *excellent* LLMD by two random people, so I called and got on her waiting list (an 18-month waiting list). I finally got in to her practice in May, 2009. My husband & I walked out of the first appointment very hopeful. After all the many, many labs came back and we went to the 2nd appointment, we left there speechless and dumbfounded with a Primary diagnosis of Late Stage Chronic Lyme, MANY co-infections, including the potentially fatal Babesia, and several secondary and tertiary diagnoses such as CFS, Fibromyalgia, Rocky Mountain Fever, Strep Syndrome and a long list of others. We learned that my body was in such bad shape and too "toxic" to do anything aggressive, so the process for healing was going to be a long one -- they estimate 5 years.

Right now, I'm only able to take "maintenance" oral antibiotics as we work to get all the environmental and heavy metal toxins out of my system and get my organs in shape to be able to absorb minerals, supplements and medications properly. I'm on a weekly IV treatment which entails 4 phases, each ~ 3  months long. I'm currently on Phase I - detoxification.

I was forced to resign from a job I *loved* as a Director of HR due to this illness (this was well before I started with my LLMD). It was like my life was pulled out from under me in a matter of seconds. I always ate very healthy, was very athletic and slight. Now, I am practically bed-ridden and become very "paralyzed" emotionally very quickly.

I rely on my faith in the Lord Jesus Christ every day. That's how I get through my days. I also have a very loving and supportive husband - Praise God!

 


Posted Jan 07 2010, 02:06 PM by MonkeyFace  

Comments

Smalls wrote re: My Lyme Story
on 01-07-2010 2:18 PM

Thank you for sharing your story here. I hope and pray that this new doctor is able to help your body regain strength and fight the many infections that you are facing. I'm thrilled to hear that you have an amazing, supportive husband.    I know that the healing may take some time, but I'm happy that you now have hope.

Please keep us updated as to your progress. Stay strong in your faith and know that you are loved and supported.

Best to you!

thatlittleangel wrote re: My Lyme Story
on 01-16-2010 1:18 PM

I wrote this to another member, and I'm going to post the same to you. God bless you, Honey.  Our entire family sympathizes with you.  PLEASE, I am begging you, DON'T GIVE UP! There is an alternative to antibiotics and being bedridden.  Don't wait on the doctors to make you better. Take your health and life into your own hands and help yourself get well! We are a strong family of faith and believe we have been given this opportunity, as a mission to help others with Lyme Disease.  We are trying to take a horrific time in Megan's life, and turn it into something positive. My niece does still have some pain, due to nerve damage, but the Lyme and secondary infections are completely gone! She is doing great! The nerves will continue to heal, as time progresses. You're not too toxic! HBOT can kill the bacteria, without you even being on antibiotics. Megan had to come off of the antibiotics, because her stomach was so irritated, from being on them for so many years. I would take her to the doctor, sometimes, and she would dump out over 28 meds from her purse...Everything from antibiotics to pain patches. This was up until this past June. I will pray for you and your husband, that you will have the strength to get through this. There is a light at the end of the tunnel.  Follow it!  Get well!  Get your life back!  You can do it.  Also, understand, we live in Florida. If you think the doctors up north think your crazy...come down here! They say the disease isn't in the south. Yet, the PA doctor has over 90 patients that travel from our area code, alone, to see him. Our area code is a total of a 200 mile span, along the panhandle of FL...So, a very small territory.  The doctors are the crazy ones, if they think that.  Also, have you seen the independent film, "Under our skin"?  It's a great movie, explaining Lyme and its devastating effects.  Anyway, the following is what I wrote earlier, and the same applies to your post:

I am heartbroken as I read your bio.  My niece has had Lyme for 13 years.  She is 24 years old.  We watched her go from a vivacious, brilliant teenager to a bedridden young adult, who should have been enjoying life to the fullest and attending college on her full scholarship!  It has been a horrific experience.  She, too, went to NUMEROUS physicians, over 20, diagnosing her with everything from low self esteem to psychosis.  For over two years, she traveled from FL to PA, to see a Lyme specialist.  Finally, this past summer, she went to San Diego for Hyperbaric Oxygen Treatment.  She did 40 days of straight treatments, under a physician's watch, and has been back one time for a booster, since.  I am SOOOOOO thrilled to say, "We have our Megan back"!  She went on a date tonight!  Something unheard of less than a year ago.  We have been so touched by this type of treatment, that we are opening a HBOT Center, here, in our hometown in North FL in a couple of months.  Look up www.hboinfo.com  Scroll down the page and you'll see Megan, from Florida's, pic and story.  That's her, my niece.  HBOT can be a little costly, since, of course insurance doesn't pay for the treatment.  But, it's priceless to have your life back.  We did a fund raiser for Megan and had her trip and treatments paid for, in a day.  It can be done!  Don't turn down help from your family and friends! They love you and want to help you get better.  Robert (Bob) Sands is the director and inventor of the Sands Chambers and Healing Chambers, International.  He is Australian and a BRILLIANT man! He knows Lyme inside and out! Let him help you!  Let us help you!  I am not writing you to advertise our chambers, in any way! I am writing you, because we are FURIOUS at our FDA, physicians, insurance companies, and Government for turning their heads to Lyme!  We have got to educate people that antibiotics are not the only answer and that the over 200,000 people a year, who are infected with this debilitating disease are NOT crazy! We are small, and we are one, alone...But, together, we will be able to make a change! God bless you and please let me know if we can help you in ANY way!  My email is thatlittleangel@hotmail.com    Thanks, and God Bless! Melea

thatlittleangel wrote re: My Lyme Story
on 01-16-2010 11:39 PM

This is my niece's bio she wrote on the www.hboinfo.com website, back in September. Just wanted you to have it.  She IS, now, medication free and has very little pain.  God Bless you! Please check into this treatment and get your life back!  Melea

Entry on www.hboinfo.com :

July 2009 'WHY I TRAVELLED ALL THE WAY FROM FLORIDA TO SAN DIEGO TO GET RID OF LYME DISEASE" Megan Guthrie . . . .

     Hello everyone!! My name is Megan Guthrie and I am 24 years old. I live in the panhandle of Florida, and I've had lyme disease for at least the past 12 years, probably longer, but I was just diagnosed about three years ago.

     Over the years I've had numerous problems, everything from feeling like I was on the verge of insanity to passing out at work from a grandmal seizure. The main symptoms that bothered me the most were severe nerve and muscle pain in both of my legs, severe migraines, anxiety, depression, and chronic fatigue just to name a few. Pretty much every symptom that is listed under lyme disease I've had. So, to make a long story short, I went through at least 12 doctors before I finally found one that would treat me. For about 2 1/2 years I was on oral antibiotics (along with several other medications) and they never seemed to help. It finally got to the point to where my stomach couldn't handle the antibiotics anymore. I was so upset, and I had had it with waking up everyday, laying in bed most of the day, taking some pain medicine to try and get up, and then never getting any relief. I felt like a prisoner in my own home, and the pain was just unbearable at times.

     Finally, one day I was just so frustrated with having so much pain everyday, even with all of the pain medicine that I was on. I was determined to find a treatment that would work. I went to the computer and typed in "lyme disease treatment centers". The search results came back with "hyperbaric oxygen treatment centers". I didn't know much about this, but I did research, called a bunch of the clinics that I had found online, and finally found a great hyperbaric oxygen clinic in San Diego, CA called Healing Chambers of America.

      At this specific clinic they are very aggressive with lyme disease. They go down further than any other clinic I could find---2.8 atmospheres. This is very important for lyme disease. The lyme bacteria cannot survive in 100% oxygen. So, when you go down that far, it is pressurized so that you are breathing in 100% oxygen, and it kills the bacteria. Crazy, huh? Yet it's so simple. I don't know how to explain everything to the exact detail, but I do know that when I made the decision to find a way to go to San Diego and get these treatments, I was making a life changing decision and at the time was not even aware just how much this was going to change my life. This summer I went and got 39 hyperbaric oxygen treatments and I think it's safe to say that I am now a new person. I still am amazed at the difference between the way I felt 2 months ago compared to right now, present day.

     For the past few years I was bed ridden, in so much horrific pain. If I ever did get out of the house to do anything, it was only for a brief amount of time. I felt crippled when I walked, especially when I went up and down stairs--those were the worst. As far as medication goes, I was supposed to be taking 46 pills a day! Now, my pain is almost gone, down to a bare minimum. I walk and prance around everywhere like there is nothing wrong, because that's the way I feel. I have NO problem with stairs, and as far as medication goes, I'm down to only four different kinds, and I'm sure that before long I will be off of all of them!

     I'm so happy and still in shock. I just cannot believe that this whole time I was suffering, there was something all along that actually works so well, and it's all natural. Now that I'm doing so much better I want to tell everyone about it so that they can get help. My family was so impressed with the way that it worked, that they decided to open up a hyperbaric clinic themselves, so we cannot wait to start helping others move on to the path of healing. I hope that maybe my story somehow might help someone out there. Please, if you are suffering from lyme disease, I've been where you are. I've felt that pain. Find a way to go to Healing Chambers of America. My family had to have a fundraiser for me to raise money to go, and without a doubt it was worth it. The people that work there really do care about your health and about getting you better. They're wonderful people! So, get on it and go get better! They're waiting on you!!! Good luck to everyone and I hope you get to feeling better! Peace!!

Megan Guthrie

Add a Comment

  PRIVACY POLICY | Site Terms of Use | Advertising Policy | About Us | Contact Us | Partner With Us | Face to Face Health Blog

Copyright© 2010 FaceToFace Health, Inc. All rights reserved. Information on this site does not constitute medical advice.