Good Morning, I am new to this site and I am here to seek information about SLE. My daughter has this type of Lupus and is having a very hard time for about six months now. I would welcome any and all contacts that have information of any kind about Lupus. I have read about SLE and it seems so very confuseing to me... So many health issues related to Lupus. She has or gets ... huge skin lessions, headaches, bowl and stomach issues, wide spread pain ( is this the Lupus or Fibro.?), kidney issues, urine retention, constipation, stomach bloats every time she eats ... she looks pregnat when this happens., tired all or most of the time, throat feels or is swollen and it is hard for her to swallow, ect. ect.
She has tried many types of medications, and is on plaqwenil, paind meds. norotin, fluid pills, muscle relaxers, elevil, ect. She is suppose to schedule a muscle bioposy to check for different reasons for her nueropothy. Is currently seeing a Rhumy., kidney specialist, and has an appointment with a Endocranologist.
Thanks, and please excuse the spelling errors.
Posted
Feb 18 2010, 08:55 AM
by
rem10102