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Good Morning, I am new to this site and I am here to seek information about SLE. My daughter has this type of Lupus and is having a very hard time for about six months now. I would welcome any and all contacts that have information of any kind about Lupus. I have read about SLE and it seems so very confuseing...
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I accomplished something today . When I feel exhausted- which is the norm- I give in and nap or just go to bed and don't get out till the next day. So, I started laundry, and cleaned the entire apartment. It might be only five hundred square feet, but when you have lupus, a small cluttered apartment...
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For those of you who might be wondering...the doctor gave me some good news yesterday! Yes, I still have lupus *awww* but it appears to be under control for the moment. I have been pretty sick the last two months so hearing that it could be worse, but it's not, was encouraging. It doesn't look...
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I was a very productive person working 2 full time jobs at vet clinics and ran my own rescue, Cajun Chihuahua Rescue & Retirement. I had been sick for years but was told I was just getting old. I can no longer work, I had to stop rescuing needy lil Chihuahua's which in my ten years of rescue...
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Do you ever get tired of that heavy feeling in your head? That grogginess that comes with taking strong medicine? That feeling that makes you sit up in bed in the morning, look at the floor for a moment, and let out a loud "BLAH!" as you let yourself fall back into bed? I've been fighting...
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Challenges...we face them everyday. For most people, "challenges" consist of dealing with difficult people at work or trying to juggle the kid's soccer practice with important business meetings. For those of us with lupus, challenges can come in the form of just getting out of bed in the...
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Taking 7 meds for lupus, pericarditis, rheumatoid arthitis, digestive problems, etc, and slowing down from active lifestyle has put me in a depressed place, my husband treats me like a patient, and I can't walk too well, he doesn't seem to think I should drive because of meds,just lost the last...
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Lupus flare began 12/23/2009. Have no idea what brought it on. Today is 01/15/2010, and it is finally receding. Symptoms have been debilitating fatigue, severe muscle pain and weakness. Also, had a breakout of ulcers in my mouth and a bacterial infection in my left breast. The ulcers are gone, but the...
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Don't know how to manage this site. I have Lupus, separately depression (my Dad had the same depression). I'm always up against financial difficulties because I can't work so much. God always takes care of me.--Christianna
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I don't even know what to feel! Am I angry? Am I exhausted? Am I ready to throw in the towell? I just can't describe this! How much can one person take? I can't take the pain anymore! I have delt with pain for a long time, this is extraordinary pain! And to be told its permenent and we can...
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I just can't shake this fatigue. Yesterday I fell asleep about 4 pm for what was supposed to be a nap and I didn't wake up until 8 am. I have been tired all day ever since. This fatigue is so debilitating. I can't even take care of my younger kids. My oldest kids and my boyfriend are doing...
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shhh... there lies a secret deep inside of the pain in which i must hide sometimes it will seep and then i will weep on the inside because i must hide i have become a good actress and want for the norm but pitty is not pretty, especially when worn so once again i am left torn no words to be spoken not...
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i have been delt a deck in which i must play it would be nice, for just one day to grow some wings and fly away fly into another day if i turned the top card and to my dismay i found a card i could not play id flap my wings and away i'd go to a place that i would not know if my card played out well...
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nobody knows the battle within i am just not fit for my own skin i want to run and jump and play my body just tells me there is no way i want to run far, far far away and pretend i cant hear a word that i say i want to be out of me, free as a bird that sounds sick and i know its obsurd but its the truth...
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my heart feels like a gelatinous mess, flipping and flopping all over my chest, and without warning, it sends a great pain, bringing me to my knees once again.