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Scared to death

I was told by my P.A. that I more than likely have lupus, but he would wait for me to see a rhuematologist to get a real diagnosis.  I can't get in until January 5, 2010 and since he told me this, he refuses to treat me.  I tried changing to another doctor, one with a M.D. and she wanted to read my records before accepting me.  I signed the release from my P.A. and a few days later I received a phone call from the M.D. and the receptionist told me that after reading my records, the doc would not accept me as a patient.  I have no idea why this is.  I have never been a complainer and I have never sought out drugs for the fun of it, and even refuse anything that is narcotic.  Can anyone give me some insight as to why this is happening to me?  I am wondering if it is because I have Medicaid.  I just signed a release for my records for another doc that treats my boyfriend for his Multiple Sclerosis, so I am hoping that she will take me.  I haven't been feeling very bad lately, except for fatigue, but that is because I had to go to the ER because the pain was so severe.  My blood pressure was up to 179/98 and I told them it was because of the pain.  The ER doc gave mea shot of demerol two separate times and that made my blood pressure go down.  I was given a CT scan and it showed tissue damage so she assumed I had fibromyalgia and she prescribed me the medications I am on now.  Since then, I haven't had much pain, thank God and the ER doc.  I told her about my doc and she gave me refills on my meds for three months to help me.  Other than that doc, I have felt nothing but hopeless.  I have been suffering from major depressive disorder, PTSD, and anxiety disorder for years, too, so now I am even deeper into depression and have a lot more anxiety than I ever have.  A few months before my P.A. told me about the lupus, I was at a walk-in clinic because my urine was completely black, but I had no other symptoms.  I had a severe kidney infection and was treated with antibiotics.  Now I am so scared that my kidneys will fail before anyone will treat me.  Can anyone talk to me and give me some insight or at least reassure me?


Posted Oct 31 2009, 04:38 PM by webbersue  

Comments

Smalls wrote re: Scared to death
on 11-02-2009 1:47 PM

Have you been able to get in to see your boyfriend's doctor? If so, did they have any insights for you regarding why your other doctor stopped treating you?

I'm sorry that you are facing such hard times. I am thinking of you and hoping that things improve quickly!

webbersue wrote re: Scared to death
on 11-03-2009 11:02 AM

Thanks you so much  for your thoughts!!  No, I haven't heard from the other doctor yet, but I will call today to see what is up.  I feel so helpless!!

admin wrote re: Scared to death
on 11-04-2009 11:28 AM

Will Medicaid allow you to see a different rheumatologist?  I can't believe they can't fit  you in until January - that seems a little ridiculous.  Perhaps you can ask the rheumatologist's office if they can refer you to someone else who might be able to see you sooner.  I would let them know you are having some serious symptoms and ask if they'll put you on a waiting list in case anyone in front of you cancels their appt.

Keep us posted. I hope you are able to get answers soon!

queenc wrote re: Scared to death
on 11-07-2009 6:42 AM

He can't treat you unless you have an offical diagnosis from a Rhematologist....he has to make sure it is Lupus..there are many diseases that all have the same symptoms....be strong and be patient......I had to do the same thing!!!!!

    Just be sure to go to your appt.!!!

      Good Luck to you!!

webbersue wrote re: Scared to death
on 11-08-2009 11:09 AM

Thanks for the insight!  I live in a remote area with only two rheumatologists within at least 100 or so miles.  I am trying to switch my doctor and she is from a different hospital network, so I am hoping she accepts me and refers me to a rheumatologist that is near me.  The one that I am scheduled to see is over two hours away in the middle of winter and where I come from, winter is not a good time to be traveling that far.  Also, I did ask to be on a waiting list for cancellations right away, so I have tried alternatives.  I cannot see any other doctor unless my PCP refers me, because that is how Medicaid keeps their costs down.  But anyway, thanks to all of you who responds!  I really appreciate the consideration!

webbersue wrote re: Scared to death
on 11-12-2009 10:38 PM

I finally have been approved by my boyfriend's doctor to be her patient.  I have a better outlook now and I have an appointment on Nov. 20.  Cannot wait to see what she has to say.  Hopefully she will run more tests, too.

webbersue wrote re: Scared to death
on 11-17-2009 3:02 PM

I was accepted by my b/f's doc and I see her on Friday.  I can't wait.  I hope she turns out to be the one I can trust to help me.

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