Fatigue

Just wanted to send you a note of encouragement to hang in there!  Glad your boyfriend and your older kids are helping out. Don't feel guilty about the house, just focus on your health for now.

I hope you have a great day!

I just read your Bio--have you tried seeing a rheumotologist?

They would be the most helpful to treat you.  Mine saved my life in 2000.

Unfortunately fatigue in Lupus does not ever go away -you just find a way to cope with it-with the help of your family.

I decided to post this for everyone with Lupus. There is no cure for Lupus, but it may be a misdiagnosis and going gluten free may be worth a try.

I felt the same way but my diagnosis was different. After being diagnosed with fibromyalgia and IBS, I finally found my real problem. Celiac disease, I'm writing you because I saw a special on tv that talked about the symptoms of Lupus and how the doctors conclude that it's Lupus only by eliminating everything else.

Celiac disease and gluten intolerance have so many symptoms that doctors have trouble diagnosing it and I haven't found a doctor yet that knows much at all about it. Two books to read " The Gluten Connection" and "Healthier without Wheat".

If you can eliminate the gluten take extra vitamins after your body starts to heal and slowly build up to exercise.

I know your pain and believe me, even though I still have pain, the gluten made it 100 fold.

Before being diagnosed I was so weak that I only functioned for about 2 hours a day. I was so weak that I couldn't open a can of pop. My feet hurt so bad I could hardly walk.  Now my strength is back an I only have pain from the irreversible damage that the gluten caused my body. My nerve endings have settled down.

It's been two years now and I still accidentally consume gluten on occasion and I pay for it for a week and tell myself never again it is not worth it.

Even if a doctor doesn't give a diagnosis, it would be worth a try to make the pain go away. There are many sites with helpful info.

www.gluten.net www.celiac.org  www.celiaccentral

Ps I had fatigue and depression both improved after getting rid of gluten in my diet, but I also had thyroid problems.

To: Frustrated - I am very happy for you that you do not have Lupus. And it would be nice if Lupus was controlled by diet but that is not the case. Doctor's can test your ANA to see if you have Lupus. You cannot test postive for ANA and not have Lupus.