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Meet Others with Lupus Disease

Connect to other people with lupus disease. Share your story, get support and know that you are not alone in this health journey. FacetoFace Health is your trusted health community for lupus disease. Find other lupus patients who are willing to share their experiences, help answer your questions or simply give you a listening ear.

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Conditions

Teak found 77 who will share their experiences with Celiac disease

Kennedy found 68 who will share their experiences with Primary fibromyalgia syndrome

mafiabutterfly found 241 who will share their experiences with Systemic lupus erythematosus

Partners

Hep C Connection can connect to 12 members with Acute HIV infection

Autism Support NE Ohio can connect to 26 members with Autistic disorder

Angels of Epilepsy can connect to 99 members with Epilepsy

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ncmtnangel can ask 57 people about their experiences with LAMICTAL

kim5010 can ask 93 people about their experiences with PLAQUENIL

jenlvsdragonfly can ask 67 people about their experiences with PREDNISONE

 
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Do you have Lupus Disease?

Lupus erythematosus (Lupus Disease) is an autoimmune disease that affects the connective tissue. Lupus disease is a chronic inflammatory disease that occurs when the body’s immune system attacks its own tissues and organs. Inflammation caused by lupus disease can affect many different body systems, including joints, skin, kidneys, blood cells, heart, and lungs. Lupus disease occurs nine times more frequently in women than men, although the reasons for this are not known.  People from Asian and African American decent are affected more than other races. 4 kinds of lupus exist — systemic lupus erythematosus, discoid lupus erythematosus, drug-induced lupus erythematosus and neonatal lupus. Systemic lupus erythematosus is the most common and serious form of lupus disease.

The cause of lupus disease is not yet known.  It is an autoimmune disease which means that the body’s immune system is not able to differentiate between healthy cells and harmful cells. With an autoimmune disease, the body attacks healthy cells and tissues and can cause chronic inflammation and pain.  Most people with systemic lupus erythematosus develop arthritis as a result of the disease’s affect on the joints (specifically, the fingers, hands, wrists and knees).
People with lupus disease will often have some or all of the following symptoms:

  • Fatigue
  • Fever
  • Headaches
  • Sensitivity to light
  • Hair Loss
  • Unintentional change in weight (weight loss or weight gain)
  • Pain or stiffness in the joints (fingers, hands, wrists, knees, ect.)
  • Rash on the face that covers both checks and the nose. (This rash is often butterfly shaped).
  • Memory loss
  • Swollen glands
  • Nausea

Although, there is currently no known cure for lupus disease, advancements in medical science has greatly improved the outlook for lupus patients. There are medications that help alleviate some of the symptoms of lupus.  Studies suggest that 85% percent of people with lupus disease live ten years or more after diagnosis.

It is common for people with an autoimmune disease such as lupus to suffer from anxiety and depression. It may be helpful to connect to others who share your medical condition. FacetoFace Health offers a secure lupus disease support group where members may anonymously connect to others with lupus.  Ask questions about other people’s experiences, symptoms and treatment results or simply share your thoughts and get support from others who know what you are going through.  You are not alone in your battle for a healthy, productive life.


Cited References and Additional Resources:
Lupus Foundation of America
Mayo Clinic
Google Health

More Information on Systemic Lupus Erythematosus

 
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