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Connect to Others with Systemic Lupus

Need to find other patients dealing with systemic lupus erythematosus (SLE)? FacetoFace Health is your trusted online lupus community. Find other patients like you, ask questions, get support and know that you are not alone. Real lupus patients offering real support to one another. Join our health community today!

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Do You Have Systemic Lupus Erythematosus?
Systemic Lupus is an autoimmune disease, which means that your natural defense system (immune system) attacks its own tissues instead of attacking foreign substances like bacteria and viruses. This causes inflammation. Inflammation causes swelling, pain, and tissue damage throughout the body. If you develop severe lupus, you may have problems with your kidneys, heart, lungs, nervous system, or blood cells. Lupus is the common name for systemic lupus erythematosus, also called SLE.

Although some people with systemic lupus have only mild symptoms, the disease is lifelong and can become severe. But most people can control their symptoms and prevent severe damage to their organs. They do this by seeing their doctors often for checkups, getting enough rest and exercise, and taking medicines. There are four other types of lupus: discoid or cutaneous lupus, drug-induced systemic lupus, neonatal lupus, and subacute cutaneous lupus.

What causes systemic lupus?

The exact cause of systemic lupus is not known. Experts believe that some people are born with certain genes that affect how the immune system works and that they are more likely to get lupus. Then a number of other factors can trigger lupus attacks. These include viral infections, including the virus that causes mononucleosis, and sunlight.

Although these things can trigger lupus, they may affect one person but not another person.

What are the symptoms?

Systemic Lupus symptoms vary widely, and they come and go. The times when symptoms get worse are called relapses, or flares. The times when symptoms are not so bad are called remissions.

Common symptoms include feeling very tired and having joint pain or swelling (arthritis), a fever, and a skin rash. The rash often happens after you have been in the sun. Mouth sores and hair loss may occur. Over time, some people with lupus have problems with the heart, lungs, kidneys, blood cells, or nervous system.

How is systemic lupus diagnosed?

There is no single test for systemic lupus. Because systemic lupus affects different people in different ways, it can be hard to diagnose.

Your doctor will check for lupus by asking you questions, looking for common symptoms, and doing some blood tests. It is easier for your doctor to diagnose lupus if you have the most common symptoms and your blood has certain proteins. These proteins are called antinuclear antibodies, or ANAs. But other problems can cause your body to make ANAs, so doctors will use blood tests and other tests to find out if you have lupus.

How is systemic lupus treated?

Systemic Lupus is treated by:

  • Applying corticosteroid cream for rashes.
  • Taking nonsteroidal anti-inflammatory drugs (NSAIDs) for mild joint or muscle pain and fever.
  • Taking antimalarial medicines to treat fatigue, joint pain, skin rashes, and lung inflammation.
  • Taking low-dose corticosteroids if other medicines are not controlling your symptoms.

Because corticosteroids are powerful medicines and can cause serious side effects, the doctor will recommend the lowest dose that will give the most benefit.

The doctor may also recommend other medicines that slow down the immune system.

How can you manage systemic lupus?

One of the goals of controlling mild to moderate lupus symptoms is to prevent flares, the times when your symptoms are worse. Some of the other things you can do include:

  • Rest to reduce stress.
  • Avoid the sun. Wear sunscreen and protective clothing when you are outside.
  • Exercise regularly to prevent fatigue and joint stiffness.
  • Stop smoking.
  • Learn the warning signs of a symptoms flare, such as fatigue, pain, and rash, and take steps to control them.

With good self-care, most people with lupus can keep doing their regular daily activities.

It is important to learn about lupus so that you can understand how it might affect your life and how you can best cope with it. Also, help your family and friends understand your limitations and needs when your symptoms flare. Develop a support system of family, friends, and health professionals.

More information about Lupus Erythematosus .

 

 
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