DoloresJ - - FacetoFace Health

DoloresJ 20 Female

USA

My Bio

My name is Dolores J. I''m nineteen, an infantile cancer survivor, a person living with an autism disorder, and a former wearer of a Boston back-brace for scoliosis. I''m very open about all this, so if you''re going through it or are just curious, ask away. I''m into learning about various developmental disabilities, chromosomal anomalies, UFOs, lysosomal storage diseases, and basic child development. I also like the show Roseanne, Talking Heads, and Japanese food.

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Health Diaries

DoloresJ's Health Diary

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Public Health Profile


I have Atypical autism	Currently Feeling

I am currently feeling:	not well at all	very good

I am considerably high-functioning, better belonging to the Asperger's label, but am clinically diagnosed with the disorder. I have come a long way, yet struggle to have what is considered to be a normal life. I prefer to say that I function but not thrive.

Diagnosed 4 years ago


I have Neuroblastoma	Currently Feeling

I am currently feeling:	not well at all	very good

I had this during infancy, and although my mind cannot remember much, my body still can. This illness has contributed the most to my nine total surgeries.

Diagnosed 20 years ago


I have Adolescent idiopathic scoliosis	Currently Feeling

I am currently feeling:	not well at all	very good

Had a Boston brace for three years. Was a real pain in the ass, but I dealt with it. Many recommended the book Deenie by Judy Blume. I love Judy, but I could not relate at all. Made middle school even more isolating.

Diagnosed 8 years ago


I have the symptom of Social problems	Currently Feeling

I am currently feeling:	not well at all	very good

The monster of my disability is hidden in my darkest hours - or in the comforts of my home. I struggle socially, sometimes I know it and sometimes I don't. I am quite clumsy, with poor coordination and visual-spatial skills, which makes learning to drive a challenge. I strongly dislike (or rather, fail to tolerate) change in my environment, from having something significantly disturbed in my own room (shrieking) to my mother wishing to paint the kitchen (crying.)

Started: 05/29/1991 End date not specified


I have the symptom of Visual impairment	Currently Feeling

I am currently feeling:	not well at all	very good

I have visual-spatial problems that have delayed my abilities to drive. I also have a lazy eye and have (controlled) double-vision.

Started: 05/29/1991 End date not specified


I went to Shriners Hospitals for Children - Boston	Overall Satisfaction

My overall experience was:	not at all pleasant	very pleasant
Wait time:	very long wait	no wait time
Cost:	not at all affordable	very affordable
Cleanliness:	not at all clean	very clean
Competency of the staff:	not at all competent	very competent
Knowledgeability of the staff:	not knowledgeable	very knowledgeable
Bedside Manner:	not at all pleasant	very pleasant

	I've been very ill in my childhood, and this hardly felt like a hospital.

Admission Date: 04/12/2003 Release Date: 07/19/2009		Recommend: YES


I went to Children's Hospital Boston	Overall Satisfaction

My overall experience was:	not at all pleasant	very pleasant
Wait time:	very long wait	no wait time
Cost:	not at all affordable	very affordable
Cleanliness:	not at all clean	very clean
Competency of the staff:	not at all competent	very competent
Knowledgeability of the staff:	not knowledgeable	very knowledgeable
Bedside Manner:	not at all pleasant	very pleasant

	I cannot remember much, for I was very young - but I'm alive, so that's all that matters, right?

Admission Date: 07/21/1992 Release Date: 04/22/1993		Recommend: YES


I have an allergy to Cat Hair	Allergic Reaction

My allergic reaction is:	not that severe	very severe

Would have one, anyway.

Onset date not specified Recovery date not specified


I have an allergy to Dogs	Allergic Reaction

My allergic reaction is:	not that severe	very severe

Would have one, anyway.

Onset date not specified Recovery date not specified


I am interested in: Caring for Autistic Adults

Caring for Autistic Adults

I am currently looking for work with adults with autism and other significant disabilities. I am especially eagar to work with other females on the spectrum.


I am interested in: Caring for Autistic Children

Caring for Autistic Children

I almost naturally feel responsible for protecting others affected by autism, especially the little ones. I fear they will face the misunderstandings that I endured.


I am interested in: Down Syndrome

Down Syndrome

I love children with Down Syndrome - at least the ones I've met. It would be my pleasure to meet other friends, families, and individuals with DS. I am interested in getting to know older people, not just children (despite how cute they are.) I am sincerely blessed by my sister - and I'm an atheist!