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boyzRus  36  Female
Location: MARIETTA, PA  USA


My Bio
I am a 34yr. old mother of 4 that was diagnosed 8yrs. ago with lupus. I was recently diagnosed with fibromyalgia & osteoarthritis of the spine as well. I struggle w/ the everyday fatigue, muscle aches, joint pain, plus various symptoms off & on over the years. I am not one to let on to how bad I am actually feeling most days b/c as much as my friends & family may want to understand & sympathize, sympathy is not what I need or want & they just don''t understand what this disease feels like.


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Health Diaries
Public Health Profile
I have Acute systemic lupus erythematosus Currently Feeling
I am currently feeling: not well at all  very good
Diagnosed 13 years ago
I have Epilepsy Currently Feeling
I am currently feeling: not well at all  very good
Diagnosis date not specified
I have Primary fibromyalgia syndrome Currently Feeling
I am currently feeling: not well at all  very good
Diagnosed 2 years ago
I have Osteoarthritis of spinal facet joint Currently Feeling
I am currently feeling: not well at all  very good
Diagnosed 2 years ago
I take PLAQUENIL Overall Satisfaction
My overall satisfaction is: very low  very high
This medication worked: not at all  very well
The side effects were: very mild  very severe
one of the main side effects can be damage to the eyes. i am followed very closely by a retina specialist. I have been on/off the medication for the past 8-9yrs w/ more on than off. After the length of time I have been on it, they are starting to see some damage to the eyesight but can't be conclusive if it's from the medication itself or from the lupus itself.
Started: 10/18/2001     End date not specified Recommend: YES
I take RELAFEN Overall Satisfaction
My overall satisfaction is: very low  very high
This medication worked: not at all  very well
The side effects were: very mild  very severe
Started: 04/02/2008     End date not specified Recommend: YES
I take FLEXERIL Overall Satisfaction
My overall satisfaction is: very low  very high
This medication worked: not at all  very well
The side effects were: very mild  very severe
Started: 04/02/2008     End date not specified Recommend: YES

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